MISSION & GOALSThe mission of the UW PPC is to develop leaders who will improve the health of children with respiratory conditions through the provision of family-centered care. The UW PPC maintains five main goals:
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The University of Wisconsin Pediatric Pulmonary Center (UW PPC) is one of six centers in the nation funded by the U.S. Maternal and Child Health Bureau to train future leaders in the care of children with chronic illness.
Since 1985, the UW PPC has provided interdisciplinary, graduate and post-graduate training for graduate students in the core disciplines of nursing, social work, medicine, nutrition, and respiratory therapy.
The UW PPC leadership training takes place within the framework of serving children with respiratory conditions and their families in the mid-west region. We encourage hands-on involvement in education, product development, outreach and research. We offer a unique perspective as we serve a large geographic area that includes a diverse patient population in both urban and rural areas. The faculty and trainees commit to working together to improve the quality of life and care for children with chronic respiratory conditions. We collaborate with patients, families and trainees to develop continuing education offerings, academic course work and patient education materials.
The UW PPC is committed to interdisciplinary teaching and healing while providing family centered, community based, culturally competent, coordinated care.
Pediatric Pulmonary Center Informational Brochure
Pediatric Pulmonary Center Training Grant
Suite E5/417 CSC
600 Highland Avenue
Madison, WI 53792-4108
Patient Populations ServedThe University of Wisconsin Pediatric Pulmonary Center follows approximately 1,000 children each year with a variety of pulmonary disorders including asthma, neuromuscular diseases, cystic fibrosis, tracheostomies, ventilators and bronchopulmonary dysplasia. AsthmaAsthma is the most common chronic disorder in childhood, currently affecting an estimated 6.2 million children under 18 years; of which 4 million suffered from an asthma attack or episode in 2003. An asthma episode is a series of events that result in narrowed airways. These include: swelling of the lining, tightening of the muscle, and increased secretion of mucus in the airway. The narrowed airway is responsible for the difficulty in breathing with the familiar "wheeze." Asthma is a chronic inflammation of the airways with reversible episodes of obstruction, caused by an increased reaction of the airways to various stimuli or triggers. Asthma breathing problems usually happen in "episodes" but the inflammation underlying asthma is continuous. Neuromuscular DiseasesNeuromuscular Diseases is a very broad term that encompasses many diseases that affect the muscles and/or their nervous control. In general, problems with nervous control can cause spasticity or paralysis, depending on the location and nature of the problem. A large proportion of neurological disorders leads to problems with movement. Examples of neuromuscular diseases are Spinal Muscle Atrophy or Muscular Dystrophy. Cystic FibrosisCystic fibrosis (CF) is a life-threatening predominately caucasion, genetic disease affecting approximately 30,000 people in the United States. For people with the disease, a defective gene causes the body to produce a faulty protein that leads to abnormally thick, sticky mucus that clogs the airways and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty for a person to absorb nutrients in food and can block the bile duct in the liver, eventually causing permanent damage in approximately six percent of people with CF. TracheostomiesA surgical opening through the neck into the trachea, through which an indwelling tube may be inserted to assist with breathing or maintaining an airway. VentilatorsMachines that help a person breath when they are unable to do breath effectively on their own. Ventilators range in all sizes and capabilities to be in the ICU or home setting. Bronchopulmonary DysplasiaBronchopulmonary dysplasia is a chronic pulmonary conditions that infants, with respiratory failure, in the first few weeks of life may develop. Immaturity, oxygen toxicity, and positive pressure ventilation have all been implicated in the origin of BPD. Pediatric Pulmonary Centers: History & GoalsPPC HistoryFor much of this century, children with respiratory disorders did not live beyond infancy. As more children survived because of improved treatments, training was required to ensure that children with respiratory conditions were diagnosed appropriately and received the best care possible. To provide children with respiratory disorders with effective treatment and ongoing care, the federal government funded 13 pediatric pulmonary centers (PPCs) in 1967. In 1973, the federal Office of Maternal and Child health (OMCH) took over the administration of the PPC grants. OMCH recognized the importance of training multidisciplinary teams to address the complex needs of children with pulmonary conditions, and it changed the grants’ focus to include multidisciplinary training of physicians, nurses, respiratory therapists, nutritionists, and social workers. Another area of emphasis added to the PPCs was a population-based, public health focus. Throughout the 1980s and 1990s, several additional shifts occurred in the field of pediatric pulmonary medicine. Newborns were now surviving as a result of technological interventions. Chronically ill children were entitled to receive an education in the same settings as their peers. Comprehensive care moved from hospital into homes and schools. In response to these shifts, PPCs changed their emphasis as well. Rather than focusing exclusively on medical interventions, centers now provide family-centered, culturally appropriates, developmental, and psychosocial support of children and their families. Interdisciplinary team members also work with the public health system at local, regional, and national levels to achieve these goals. Currently, more than 7 million children in the United States have lung-disabling conditions, including asthma and cystic fibrosis. Respiratory conditions are the cause of most hospitalizations for children ages 1 through 9 in the United States and are also responsible for many days of missed school. The Maternal and Child Health Bureau (MCHB) pediatric pulmonary centers training program is designed to do the following: (1) improve the health status of children with acute and chronic respiratory conditions; (2) develop and sustain community-based systems of care; and (3) advance knowledge in the pediatric pulmonary field. Program CharacteristicsThe purpose of the interdisciplinary pediatric pulmonary centers training program is to prepare health professionals for leadership roles in the development, enhancement, or improvement of community-based care for children with chronic respiratory diseases and for their families. These PPCs provide interdisciplinary training of health professionals, engage in active partnerships with state and local health agencies and health professionals, and serve as models of excellence in training, service, and research related to chronic respiratory conditions in infants and children. HighlightsFaculty/Trainees PPC traineeships are available in pulmonary medicine, nursing, nutrition, pharmacy, respiratory therapy, and social work. The program trains at both the graduate and postgraduate levels in the primary program setting as well as in diverse community settings. Faculty engage in relevant research. Both faculty and trainees provide consultation and technical assistance to develop or to improve community-based services. Additionally, the program collaborates with state Title V programs to improve community capacity by integrating services and resources, conducting needs assessments, and jointly developing continuing education and consultation efforts. Curriculum The program prepares trainees for leadership by providing not only clinical training, but also curriculum that includes a broad public health perspective consisting of, among other things, the development and implementation of systems of care, advocacy, public policy formulation, and legislation. PPCs also provide ongoing continuing education activities through community-based workshops and seminars, conferences, and other activities designed to enhance skills or disseminate new information. Program ProfileIn 2010, MCHB funded six PPCs around the country. Additional information about the PPCs The University of Wisconsin PPC Goals
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