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Cultural Competence While Working with the Deaf/Hard of Hearing

This power point presentation, written and conducted by Jason Marshall Valentine, MSSW, recent graduate of UW-Madison School of Social Work and of the UW-Madison Pediatric Pulmonary Center, focuses on work with the deaf and hard of hearing population. Topics covered include definitions, statistics, interpersonal tips, lip reading, working with interpreters, captioning, UW Hospital services, planning for meetings, and challenges.

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Cystic Fibrosis Parent Education

The following lectures were presented as part of a Cystic Fibrosis Parent Education webcast sponsored by the University of Wisconsin Cystic Fibrosis Center and the Pediatric Pulmonary Center held on 12/9/09. The lectures cover a variety of topics related to recent research and treatment developments presented at the 2009 North American Cystic Fibrosis Conference (NACFC). The lectures were presented live over the internet, allowing parents to interact with and ask questions of presenters. The lectures are offered here in an archived format.

Updates in Cystic Fibrosis Related Diabetes: NACFC 2009

Erin Seffrood, MS, RD, CSP

or Download the video.

Optimizing Nutritional Status: NACFC 2009

Erin Seffrood, MS, RD, CSP

or Download the video.

Updates in Vitamin D Research: NACFC 2009

Erin Seffrood, MS, RD, CSP

or Download the video.

Pulmonary Exacerbations in CF: Update from NACFC 2009

D. B. Sanders, MD

or Download the video.

A Parent Perspective on the NACFC 2009

Deb Silvis, BS

or Download the video.

NACFC 2009: Clinical Trials Update

Michael Rock, MD

or Download the video.

Electronic Medical Home Care Plan

This comprehensive medical summary/care plan is to be used for children and youth with special health care needs to facilitate coordinated quality care. The Care Plan is best completed by parents and primary care providers together. The Care Plan is one consistent information source that can facilitate consultation with specialty providers, emergent or urgent care, and introduction to new health care providers.

Download the Care Plan

Spinal Muscular Atrophy (SMA) Lecture Series

The following lectures were presented at an SMA Family Education Day held at the University of Wisconsin on August 15, 2009. The lectures cover a variety of topics to help families better understand various aspects of Spinal Muscular Atrophy (SMA). The lectures were presented to an in-person audience and live over the internet, allowing parents to interact with and ask questions of care givers and medical experts. The lectures are offered here in an archived format. Due to network and firewall issues, the sound quality is not optimal. Still, we hope you find the information to be beneficial.

Clinical Update for Parents of Children with SMA

Mary Schroth, MD

or Download the video.

Navigating Your Child's Course of Therapy for Best Outcomes

Karen Patterson, PT, MS, PCS and Krista Kienitz, OTR

or Download the video.

Nutrition Issues in SMA

Mary Marcus, MS, RD

or Download the video.

Transition to Adult Healthcare Booklet

Please view the links below for a series of booklets prepared by members of the pediatric and adult care teams of the University of Wisconsin Pediatric Pulmonary Center and Diabetes Unit. The booklets have been created for adolescents and their families to help them learn more about cystic fibrosis, pulmonary disease, diabetes and neuromuscular disease, and how to take charge of their care. It reflects the teams’ philosophy and commitment to helping young adults and their families make a smooth transition from the pediatric to the adult care team. The publications include information on the stages of transition, checklists to help children and their families set and achieve transition goals, and common questions and answers about transition concerns.

To order copies of the booklets, please contact:

Kate Kowalski, Administrator
The Department of Pediatrics
Division of Pediatric Pulmonary
American Family Children’s Hospital
600 Highland Avenue - K4/938
Madison, WI 53792-9988
Phone: 608-262-7457
Email: kmkowalski [at] pediatrics [dot] wisc [dot] edu (kmkowalski@pediatrics.wisc.edu)