Trainee Capstones & Presentations
Trainee Capstones
Trainees are required to complete a Capstone Project toward the end of their training experience. The Capstone reflects an area of study in which the trainee has had a particular interest. Following are a select sample of Capstones recently presented by UW PPC graduates.
Physical Activity in Pediatric CF: Melding Research into Practice
This program was presented to pulmonary providers and physical therapists by Rachel Bell, MS, RD, CD, a 2013 Graduate of the long-term trainee program. The presentation reviewed recent literature and highlighted current exercise promotion practices in CF centers in the UK, Canada and the US. Also discussed were results of AFCH provider and patient surveys, as well as handouts available for use in the inpatient or outpatient setting.
Pulmonary Complications of Sickle Cell Disease
Pediatric Grand Rounds Presentation: Pulmonary Complications of Sickle Cell Disease
Presented by Kelly Cowan, MD, PPC Trainee
Developing a Pediatric Palliative Care and Hospice Program
The purpose of this leadership project was to assess current resources and utilize the literature to brainstorm methods for improving pediatric palliative care and hospice services. Tristan Prescher served on the Pediatric Palliative Care Working Group at AFCH. This organization met weekly to discuss patients that may qualify for either palliative care or hospice services. In addition, she was a part of the Pediatric Partnership for Palliative Care, involving both Agrace Hospice and AFCH. Through her work in these groups, they developed a process for setting up hospice services with patients and their families. The committee chose to utilize a modified version of Seattle Children’s Hospital’s “Decision Making Tool” as a means of communication and referral. The group also gained valuable information by interviewing providers, clients and families who have or continue to be involved in hospice services. In addition, Tristan’s role included the development of a follow-up evaluation for patients and families. This will allow the group to gain consistent feedback and ensure the best practice is consistently being utilized. These are very recent developments and will be tested in a pilot study with the next patient identified as hospice-eligible or appropriate. In addition to committee membership, Tristan also created a Facebook page entitled, Patients, Parents and Practitioners for Pediatric Hospice (P4H), to increase awareness and advocacy efforts.
Once developed, it is her hope that physicians and other professionals working with children with life-limiting conditions will appropriately refer clients to this service. This will allow children and families to receive specialized and effective treatment, thus improving their quality of life during an incredibly challenging time.
Off to College: A Guide for Young Adults with Chronic Illness
For her capstone project, Mary Arbuckle, MSW, 2012 graduate of the long-term training program, created Off to College: A Guide for Young Adults with Chronic Illness. This e-book is a resource guide with college selection considerations, academic accommodation rights and services, student housing options, tips for health care management, encouragement of peer support, financial assistance opportunities, and insurance information to assist students with chronic illness transitioning to college life. This quick guide provides information helpful to both students and parents embarking on this new journey.
Safety and Injury Prevention for Children with Special Needs
This power point presentation was created by Linn Duga RN, CPNP, 2012 graduate of the long-term training program. The goals for this project were the following:
- Explore unintended injury in the pediatric population and in CYSHCN
- Identify injury patterns and trends in children
- Focus on safety issues for the child with special health care needs
- Propose safety education strategies for CYSHCN
Growth & Nutrition in Cystic Fibrosis
This power point presentation was created by Claire Clemens, MS, RD, 2012 graduate of the long-term training program. The presentation assesses differences between two Wisconsin cohorts (2000-2004 and 2006-2010) of children with cystic fibrosis, ages 0-2 years.
Traumatic Stress and Childhood Illness: Providing Trauma Informed Care
This power point presentation was created by Tiara T. Muhr, RN, MSN, 2011 graduate of the long-term training program, and covers the following information:
- Prevalence of Chronic Childhood Illness
- Medical Traumatic Stress
- Stress Responses
- Prevalence of Medical Traumatic Stress
- Treatment Implications
- Trauma Informed Care
- Screening Tools
- Post-Traumatic Growth
- Resources for Providers
Diversity in MCH Training: A Peer Learning Collaborative
This power point presentation was created by Shanna Vander Galien, APSW, 2011 graduate of the long-term training program. According to the National Center for Cultural Competence, poor cross-cultural communication between health care providers and recipients has been linked to poorer health outcomes and less effective participation in health supporting behaviors. In addition, research also shows that diversity in the health professions has been associated with improved access, utilization and quality of care for diverse populations. This capstone presentation highlights Shanna’s participation in the Wisconsin Peer Learning Collaborative (WI PLC). The WI PLC provided a safe and structured environment to address the lack of diversity in our training programs, faculty and staff. Through the peer learning collaborative process we were able to expand our recruitment efforts and work with several key diversity entities at the University of Wisconsin-Madison. As a part of this process we received technical assistance and were able to collaborate and share ideas with other PLC groups from across the country.
Improving Pre-Hospital Care and Transport for Children with Special Health Care Needs
This power point presentation, prepared and conducted by Justine Ropp, RRT, 2011 graduate of the long-term training program, focuses on the current conditions of pre-hospital care and transport for children with special health care needs in Wisconsin. In this power point, Justine summarizes and interprets data from two questionnaires she administered related to this topic.
Methicillin Resistant Staph Aureus in Patients with CF
The following power point presentation was collaboratively written by Kate Amond and Jeneile Luebke Cleary, graduates of the UW-Madison Graduate School of Nursing and of the UW PPC. Presented by Kate Amond, the slides focus on Methicillin Resistant Staph Aureus (MRSA) in patients with Cystic Fibrosis (CF). Topics covered include the growing prevalence of MRSA in the sputum of children with CF, how MRSA effects lung function, the current protocol being used at UW American Family Children's Hospital (AFCH) CF Center to eradicate first acquisition of MRSA in the sputum of children with CF, and the findings of a study recently conducted at the UW AFCH CF Center.
Both Kate and Jeneile were instrumental in the development and execution of the study entitled "Successful Eradication of First Acquisition of MRSA: A Study of an Eradication Protocol." The results of the study were published in Pediatric Pulmonology Supplement 33, 2010, p.333.
The Amish and Healthcare
This power point presentation, prepared and conducted by Janet Poff, MSW, 2009 graduate of the long-term training program, focuses on helping healthcare professionals understand the lifestyle, beliefs and attitudes of the Amish population. The presentation offers background on the history of the Amish in the US, views of the healthcare system by the Amish, and suggestions for healthcare providers on working with Amish patients and their families.
Cultural Competence While Working with the Deaf/Hard of Hearing
This power point presentation, written and conducted by Jason Marshall Valentine, MSSW, 2008 graduate of UW-Madison School of Social Work and of the UW PPC, focuses on work with the deaf and hard of hearing population. Topics covered include definitions, statistics, interpersonal tips, lip reading, working with interpreters, captioning, UW Hospital services, planning for meetings, and challenges.
Other Trainee Presentations
PPC Fellows Grand Rounds Presentations
During their fellowship, UW PPC Fellows have the opportunity to present at the Pediatrics Department Grand Rounds. Below are links to former UW PPC Fellows' Grand Rounds presentations.
Ben Tippets, 2008-2010 UW PPC Fellow: Bronchopulmonary Dysplasia
Zoran Danov, 2008-2009 UW PPC Fellow: Obstructive Sleep Apnea Syndrome in Children