Spinal Muscular Atrophy (SMA) Parent Education
The following lectures were presented at past SMA Family Education Days held at the University of Wisconsin. The lectures cover a variety of topics to help families better understand various aspects of Spinal Muscular Atrophy (SMA). The lectures were presented to an in-person audience and live over the internet, allowing parents to interact with and ask questions of care givers and medical experts. The lectures are offered here in an archived format. Due to network and firewall issues, the sound quality is not optimal. Still, we hope you find the information to be beneficial.
SMA Lectures 2011
WelcomeDebra Silvis; Kate Vogedes; Katie Poole; Mary Schroth, MD, Mary Marcus, MS, RD  National Perspective on SMAKenneth Hobby Research UpdateChristine DiDonato, PhD |
Communication AidsBobbi Johnson, Mary Locast, Blair Panhorst Tips and Tricks for Community Activities and TravelParent Panel What Happens in the ER?Joshua Ross, MD |
SMA Lectures 2010
Update from Families of SMAKenneth Hobby, Colleen McCarthy O'Toole Download the Video Download Presentation Slides Respiratory Therapy: Helpful Information for Parents and CaregiversRhonda Yngsdal-Krenz, RRT, MBA and Justine Ropp, RRT Download the Video Download Presentation Slides Handling Hospitalizations: What to Expect and Tips for Parents and CaregiversCraig Becker, LCSW; Rhonda Yngsdal-Krenz, RRT, MBA; and Katie Poole Download the Video Download Presentation Slides |
Bracing for FunctionKaren Patterson, PT and Dana Janiak-Couture, OT Download the Video Download Presentation Slides What Happens When You Call 911Stu McVicar, RRT Download the Video What to Expect: ED/PICUBenson Hsu, MD Download the Video Download Presentation Slides |
SMA Lectures 2009: Clinical Update for Parents of Children with SMA
Breathing Basics in SMAMary Schroth, MD Download the Video Navigating Your Child's Course of Therapy for Best OutcomesKaren Patterson, PT, MS, PCS and Krista Kienitz, OTR Download the Video |
Nutrition Issues in SMAMary Marcus, MS, RD Download the Video |